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Who gets acromegaly?

Men and women are affected equally.

Most people who are diagnosed with acromegaly are aged between 30 and 50 years of age.

Very rarely, acromegaly can be diagnosed in children and adolescents. Children and adolescents will, however, develop gigantism, whereas adults develop acromegaly.

Is acromegaly hereditary?

The vast majority (over 98%) of people have tumors that develop spontaneously in the pituitary gland and which secrete growth hormone.

Thus, acromegaly is sporadic, meaning it is not inherited. When acromegaly develops at an early age some cases have an identifiable genetic mutation.

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Find out more about acromegaly

Diagnosing acromegaly

Find out how acromegaly is diagnosed and the tests that healthcare professionals may use to assess acromegaly symptoms

Diagnosis & Testing

Acromegaly FAQs

Read and hear answers to some common questions that patients with acromegaly have asked

View FAQs

Living with acromegaly

Information about the
emotional, physical
and social challenge
of living with acromegaly

Living with acromegaly
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Ipsen
Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. This site is not intended to provide medical advice or substitute a conversation with a healthcare professional. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference April 2020 NON-US-001403_US