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Richard talks about adapting to a diagnosis of acromegaly

01:17

What is your advice on coming to terms with an acromegaly diagnosis?

“My advice is to take time for yourself, for the diagnosis to settle in”

View Richard’s story >

Actual patient. Patient was compensated for their appearance.
This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

Sandrine talks about managing acromegaly

01:42

What would be your advice for managing acromegaly?

“Although the diagnosis impacts your morale, I think that, in everday life, you must always set yourself goals”

View Sandrine’s story >

Actual patient. Patient was compensated for their appearance.
This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

Learning to cope with your diagnosis

Experiencing physical and other changes due to acromegaly may make you feel tired, in pain, or just awkward and different from others around you.

Although having finally received the correct diagnosis of acromegaly can provide some relief, perhaps after several years of being unwell, you may still feel stressed and worried about what lies ahead.

Your healthcare team can arrange for counseling if you think this will be helpful.

Also, learning more about the condition can make you feel more in control of your life again.

How can I help myself?

Many people find it useful to know as much as they can about their condition and its management.

Contact your local patient support group. They can put you in touch with other people in a similar situation and can also help you with practical advice and information on issues such as:

  • Obtaining life and other types of insurance (e.g travel insurance)
  • Resources to help determine access to financial assistance for medication or medical care
  • Employment and taking time off work
  • Planning for the future
  • Traveling with a long-term condition.

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Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition

Go to tips and tools

Support groups

Find an acromegaly patient support group in the US to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

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Ipsen
Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. This site is not intended to provide medical advice or substitute a conversation with a healthcare professional. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference April 2020 NON-US-001403_US