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Why should I keep a record of my medical care?

Richard gives advice for someone newly diagnosed with acromegaly

01:32

Keeping a note of your medical care can help you in two ways.

First, it should save you having to repeat yourself every time you see a new healthcare professional by giving your essential information at the start.

Second, it will also provide you with a reminder of the tests and treatments you have had, and allow you to keep a log of any symptoms or side effects you may have had or are experiencing.

Actual patient. Patient was compensated for their appearance.
This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

What information should I note down?

Keeping a record of the following in one place or document may be useful:

Your personal details

Your name, date of birth, and contact details, including the name and contact details of someone that could be contacted in an emergency.

Your acromegaly history

Information about your acromegaly diagnosis, such as the date it was made, who made the diagnosis, your presenting symptoms and any other information that you think might be important to remember or share.

Your test and scan results

Keeping a list of the tests and scans you have had and the dates and results can be helpful. You may need to ask your doctor or other members of your healthcare team to complete this list.

Your treatment plan

Ask your doctor or someone in your healthcare team to help you complete a list of treatments you have had or are going to have, and note down any doses or timings of medications you are prescribed.

Your symptoms and side effects

Logging any symptoms or side effects you experience can be important. Try to write down the date and time, and severity if you can. Always consult a doctor if you experience any untoward effects, even if you are not sure if they are connected to your treatment.

Details of your healthcare team

Write down the names and contact details of your healthcare team, such as your general practitioner (primary care doctor) or nurse, and any specialists you may have seen.

Your general health

Although not essential, you may like to keep a record of some basic health information such as your height and current weight, any allergies that you may have, and any other conditions that you have, such as diabetes mellitus or joint problems, or others that are not necessarily due to having acromegaly.

Download a copy of the Acromunity Medical Details and Treatment Tracker to help you keep track of your medical care for acromegaly. This is something that may be most useful when you are diagnosed and during your initial treatment phase.

Acromunity Medical Details and Treatment Tracker (MS Word)

Acromunity Medical Details and Treatment Tracker (PDF)

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Ipsen
Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. This site is not intended to provide medical advice or substitute a conversation with a healthcare professional. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference April 2020 NON-US-001403_US