This website is intended for US residents only.
This website is intended for US residents only.

How does having acromegaly make you feel?

People with acromegaly have said that it makes them feel old before their time, very low or depressed, alone or isolated, frustrated and embarrassed.

Having a confirmed diagnosis of acromegaly and knowing there is treatment available often provides hope and relief. Talking with your family and friends about your diagnosis or how you are feeling may also help improve low mood. Making others aware of your condition and how it affects you is an important part of your journey and living with acromegaly.

See the practical tips section for advice on maintaining a positive outlook.

What if I get worried or concerned?

If you have any concerns or worries let someone know. Among your family, your friends, your nurse, your hospital doctor, or your general practitioner there will be someone there to help and support you. All you need to do is ask.

Make the most of your visits with your doctor. The more you understand about your condition, the more in control you will feel. Take a list of the questions you have to your next hospital appointment and write down the answers.

Or take a partner, other family member or friend with you so that they can remind you about the questions you need to ask.

They will also help you to remember comments from the doctor and nurse after your visit.

Talking to others can help

Richard gives advice on talking to other people about acromegaly


How much or how little you tell your family members or friends about your current health is up to you. Do not feel that you need to tell everyone until you are ready. Likewise, do not feel that you have to keep everything to yourself until it becomes an emotional burden, or that you have to protect your family and friends all the time.

Remember family and friends should be there to support you as much as you are there to support them.

Actual patient. Patient was compensated for their appearance.
This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique and you should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

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Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition

Go to tips and tools

Support groups

Find an acromegaly patient support group in the US to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. This site is not intended to provide medical advice or substitute a conversation with a healthcare professional. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference April 2020 NON-US-001403_US