This website is intended for an international audience, excluding the United States, Canada and France
This website is intended for an international audience, excluding the United States, Canada and France

Learning to cope with your diagnosis

Experiencing physical and other changes due to acromegaly may make you feel tired, in pain, or just awkward and different to others around you.

Although having finally received the correct diagnosis of acromegaly can provide some relief, perhaps after several years of being unwell, you may still feel stressed and worried about what lies ahead.

Your healthcare team can arrange for counselling if you think this will be helpful.

Remember that with treatment you should start to feel better. Also, learning more about the condition can make you feel more in control of your life again.

“When I look back I did not realise the seriousness of it initially. It can be overwhelming”

Maria, living with acromegaly

How can I help myself?

Many people find it useful to know as much as they can about their condition and its management.

Contact your local patient support group. They can put you in touch with other people in a similar situation and can also help you with practical advice and information on issues such as:

  • obtaining life and other types of insurance (e.g travel insurance)
  • your entitlement to free prescriptions or medical care
  • employment and taking time off work
  • planning for the future
  • travelling with a long-term condition

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Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition

Go to tips and tools

Support groups

Find an acromegaly patient support group in your country to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference SOM-ALL-000556